Silliness is Golden :: diaries :: diary :: life

Fri, May 05, 2006

And thank you very much for asking!

One reason that bad news gets reported more than good does is that bad news often comes in big discrete chunks, such as "I have cancer again." Good news tends to arrive in smaller, almost invisble increments, such as "my recovery has continued to be smooth and rapid today, just as it has for the last month." To pick two random examples.

So when I run into friends who keep up with the Silliness these days, if I haven't seen them for a couple weeks, they furrow their brows very seriously, they lean their heads forward, and they say, in this terribly intense voice. " are you doing.?" It actually takes me a moment to realize why they're reading their line so oddly.

I am great. I am biking, boozing, tossing frisbees around, having sex, paying bills late, and all that other stuff that I do. My blood counts are not quite at 100% of normal, but my blood is entirely adequate for the purposes to which I put it. The chemo appears to have been at least as successful as it was last time (I'll get further results from the lab on Monday), and my recovery has been substantially faster.

[/diaries/diary/life/] 1 comment

Wed, Apr 05, 2006

Afternoon rides needed this week

i'm back from the hospital today, no longer neutropenic, and well on the way to full health. I'll post a more detailed account soon, but in the meantime, I need to go to Mount Auburn once a day for the next few days for a little quick blood work. Since I can't take public transit yet, if anyone wants to be my shuttle service, that would be very helpful.

I should go in either late morning or early afternoon, though precise timing in unnecessary. The Thursday, Saturday, and Monday trips will be ten-minute affairs for me to get a quick shot of a white-cell-production-stimulating drug. The Friday and Sunday trips will involve an hour wait for me to get the results of blood tests back. My driver wouldn't have to wait for me--you could run errands during that time and then come pick me up.

I have a nibble for Friday, but that's far from certain, and I have no volunteers yet for the other days.

[/diaries/diary/life/] 4 comments

Wed, Mar 22, 2006

where to find the Silliness

Mr. Silliness is now situated in Mt. Auburn Hospital, room 804. His direct line is 617-499-5263. He'd love visitors, but please call first, as there may be restrictions on who can come and on what you can bring.

--Assistant to the Silliness

[/diaries/diary/life/hcl/] 2 comments

Sun, Mar 19, 2006

Return of the Unwelcome Guest

On Sunday, Spike pointed out a surprisingly dark bruise on my arm. I realized that my energy had been kind of low lately, and that I'd been feeling an occasional faint pain in my lower left ribcage, which I'd been attributing to digestive discomfort, but might be consistent with a swollen spleen.

On Tuesday I called Dr. Weissman's office, and Jill, her receptionist, who calls me 'honey,' rescheduled me from a June appointment to a quick Wednesday once-over.

Wednesday morning, Dr. Weissman told me I looked fit to her, but I should get some blood drawn, and she'd get me the results by that afternoon.

Friday ,morning, I finally managed to get Dr. Weissman on the phone. The hairy-cell leukemia is back, and I need another week of chemo. We caught it even earlier than last time (I'm not even technically anemic yet), so it isn't urgent, but the sooner started, the sooner done.

After talking wiht Spike and thinking for a few hours, I decided to give myself a few days to get things in order (a lot of apartment cleaning should happen before a neutropenic person tries to live there), and check in on Wednesday.

The therapy will be the same as last time: 168 hours of Cladribine drip in a PICC line to my heart. It's uncertain whether the fever that kept me in for an extra two weeks two years ago was due to an infection or an allergic reaction to the chemo, so I'll also be on an anti-allergic drug.

Visitors will once again be welcome. If last time is any indication, I'll be in better shape earlier in the week if you want to see a lively and entertaining Sebbo in his hospital gown. I won't know my room number or phone extension until I'm settled in on Wednesday, but i'll get that info out when I have it. Thanks to Thomas' loan of a laptop starting Thursday, I also hope to have a little net access, though that's not certain.

The whole thing is scary and stressful, of course, but not nearly so much as last time, since it's no longer a leap into the unknown. With a bit of luck, it should be nothing more than a big obnoxious inconvenience this time.

[/diaries/diary/life/hcl/] 5 comments

Wed, Sep 14, 2005

Happy Minor Injury Week!

Apparently it's Injury Week here at Silliness is Golden.

Yesterday Spike managed to strain her neck getting out of bed. Prudently worried about her sometimes fussy back, she attempted some morning stretches to limber it up. This appeared to work, but did a Bad Thing to her knee.

That afternoon I arrived at the pantry to help her haul veggies in time to watch a light cord snap and hit her in the eye. A few minutes later, a sudden return of the knee pain was bad enough to put her in a cold sweat.

Today, I picked up some fresh oysters at the Davis Square farmer's market, then moseyed over to Tags to buy an oyster knife. While I was browsing kitchen implements, a massive cutting board fell on my foot, which immediately began to swell and discolor. After accepting a couple ice packs and many consoling noises from the Tags folks, I limped home and set to work on my oysters.

You all see what's coming. I made it to #4 before my first major slip.

The hole I gouged in the heel of my palm stopped bleeding in response to a few minutes of pressure and elevation, and a bunch of exclamations which made up in volume for what they lacked in creativity. Only then did I think to hit the web, which is usually my first resort. Bolstered by a couple good tips (particularly the towel bit), the latter three went far more smoothly

Mmmm! Briny, tender, and with just a hint of sweetness at the end. They seemed saltier than usual--do restaurants usually rinse them off or soak them in fresh water or something?

Be careful, people. Please? This is not a meme I want to tag anyone with.

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