Silliness is Golden :: diaries :: diary

Wed, Apr 05, 2006

Afternoon rides needed this week

i'm back from the hospital today, no longer neutropenic, and well on the way to full health. I'll post a more detailed account soon, but in the meantime, I need to go to Mount Auburn once a day for the next few days for a little quick blood work. Since I can't take public transit yet, if anyone wants to be my shuttle service, that would be very helpful.

I should go in either late morning or early afternoon, though precise timing in unnecessary. The Thursday, Saturday, and Monday trips will be ten-minute affairs for me to get a quick shot of a white-cell-production-stimulating drug. The Friday and Sunday trips will involve an hour wait for me to get the results of blood tests back. My driver wouldn't have to wait for me--you could run errands during that time and then come pick me up.

I have a nibble for Friday, but that's far from certain, and I have no volunteers yet for the other days.

[/diaries/diary/life/] 4 comments

Wed, Mar 22, 2006

where to find the Silliness

Mr. Silliness is now situated in Mt. Auburn Hospital, room 804. His direct line is 617-499-5263. He'd love visitors, but please call first, as there may be restrictions on who can come and on what you can bring.

--Assistant to the Silliness

[/diaries/diary/life/hcl/] 2 comments

Tue, Mar 21, 2006

Countdown timer

Okay, Lazyweb--do your thing. Can anyone find (or write-if you can do it in the next 24 hours) me a free PalmOS countdown timer that can handle durations of up to 168 hours? The closest thing I've managed to find has been Less Than Zero, which maxes out at 99.I have a one-week countdown I'd like to have ticking.

[/diaries/diary/geek/] 1 comment

Sun, Mar 19, 2006

Return of the Unwelcome Guest

On Sunday, Spike pointed out a surprisingly dark bruise on my arm. I realized that my energy had been kind of low lately, and that I'd been feeling an occasional faint pain in my lower left ribcage, which I'd been attributing to digestive discomfort, but might be consistent with a swollen spleen.

On Tuesday I called Dr. Weissman's office, and Jill, her receptionist, who calls me 'honey,' rescheduled me from a June appointment to a quick Wednesday once-over.

Wednesday morning, Dr. Weissman told me I looked fit to her, but I should get some blood drawn, and she'd get me the results by that afternoon.

Friday ,morning, I finally managed to get Dr. Weissman on the phone. The hairy-cell leukemia is back, and I need another week of chemo. We caught it even earlier than last time (I'm not even technically anemic yet), so it isn't urgent, but the sooner started, the sooner done.

After talking wiht Spike and thinking for a few hours, I decided to give myself a few days to get things in order (a lot of apartment cleaning should happen before a neutropenic person tries to live there), and check in on Wednesday.

The therapy will be the same as last time: 168 hours of Cladribine drip in a PICC line to my heart. It's uncertain whether the fever that kept me in for an extra two weeks two years ago was due to an infection or an allergic reaction to the chemo, so I'll also be on an anti-allergic drug.

Visitors will once again be welcome. If last time is any indication, I'll be in better shape earlier in the week if you want to see a lively and entertaining Sebbo in his hospital gown. I won't know my room number or phone extension until I'm settled in on Wednesday, but i'll get that info out when I have it. Thanks to Thomas' loan of a laptop starting Thursday, I also hope to have a little net access, though that's not certain.

The whole thing is scary and stressful, of course, but not nearly so much as last time, since it's no longer a leap into the unknown. With a bit of luck, it should be nothing more than a big obnoxious inconvenience this time.

[/diaries/diary/life/hcl/] 5 comments

Wed, Mar 15, 2006


A real satirist is someone who says things people don't want to hear in a manner so witty and clever they eventually forgive him and let him out of jail.

A fake satirist is someone who says things people already believe in a manner so witty and clever they eventually start calling him a satirist.

[/diaries/diary/glossary/] comment

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